Autistic Reality - nothingaboutuswithoutus.net
I was born in a breach birth, with my bottom coming out first in my head last. This caused, or at least contributed to my having Hip Dysplasia. What this meant for me is that the pelvic material was there, but the ball and socket joint was not formed. Prior to my birth, this would have meant youth in a wheelchair with later life being spent with successive artificial hip transplants. However, in the month prior to my birth, two Japanese babies had successfully had a new procedure done. Others were not so lucky, and died. I was the first person in North America to have the procedure done successfully. The new procedure entailed having several operations and other procedures done to electrostatically stimulate bone growth into forming the ball and socket joints. I then spent a year in a full body cast, and another year in traction. It is safe to say, that if I were born any earlier or at a different hospital I would not have the ability to walk today.
Sensory Integration Disorder
Many people have it, especially people on the autism spectrum, but few know that it has a name. Sensory Integration Disorder entails having higher than average awareness of input from one’s senses. Sounds are louder. Smells are stronger. Tastes are more acute. Textures are more noticeable. Visuals are more detailed. People with Sensory Integration Disorder are often also much more susceptible to sudden sensory input. This can make life distracting to say the least, and very difficult in extreme cases. To me, this means that extremely large crowds can be troublesome. Although I am able to sit in large classes of almost 500 people, if those people were partying and making a lot of noise it would be difficult. Flickering fluorescent lights are a problem for me, as is sudden touching. Make no mistake though, I love to give and receive hugs!
Attention Deficit Disorder (ADD)
People with ADD are very easily distracted, with our attentions drawn elsewhere. Sudden occurrences or interesting objects can easily distract us from previous involvements. One ramification this has for me is that reading is extremely difficult, since I am so easily distracted. As a result, I get my school books in digital format, so they can be read to me while I am also doing a secondary task to occupy my mind. There are many teachers and professors who will tell you that a student who is doing work on a computer in class is easily distracted from their lecture. Because of my ADD, being on a computer in class actually helps me to pay attention by focusing my loose attentions elsewhere.
Dysgraphia and Digital Atonia
Dysgraphia is to writing as dyslexia is to reading. Whereas dyslexia is a disorder hampering understanding of the ordering of letters and words, dysgraphia is a disorder hampering the proper placement of letters and words while writing. Many people believe improper placement when writing is a symptom of dyslexia, when in fact it is dysgraphia. This is because dysgraphia is not nearly as well-known as dyslexia. Digital Atonia is a lack of muscle development in the hands leading to poor eye-brain-hand coordination. To counter my dysgraphia and digital atonia, I dictate papers on Dragon NaturallySpeaking software provided by the Nuance Corporation. I am able to train it to recognize my voice, and I am able to speak to it naturally, while it transcribes my speech on various programs such as Microsoft Word or Facebook.
Bipolar disorder used to be called manic depression. It is not called that anymore, but unfortunately many people do not recognize this fact. Bipolar disorder entails having periods of high, happy feelings, and periods of low, unhappy feelings. People have a right not to take medication, and I am against radical amounts of medication. But for me, moderate amounts of medication have helped with a number of my diagnoses, including the high-low swings of bipolar disorder.
Obsessive-Compulsive Disorder (OCD)
Obsessive-Compulsive Disorder or OCD is about exactly that: obsessions with particular topics and compulsions to do specific things. There is a misconception that OCD is almost completely about the compulsion part. This is not true. For me, my obsessions involve focusing in detail on various topics, such as architecture, government, photography, and Star Trek. You’ll notice that these obsessions are also hobbies. In my world, if I am going to have obsessions, then they might as well be fun! For me, compulsions have been about such things as straightening out the cricks in my neck and doing things favoring the right side of my body.
Asperger’s Syndrome, which is a form of Autism, is not a disorder but a form of neurodiversity. Neurodiversity is a recognized form of diversity, entailing diversity of the forms of the mind. It is as natural as diversity of skin color and sexual orientation. It is also inherent as is gender and religious affiliation. Asperger’s Syndrome is a form of autism which is no longer officially recognized by the diagnostic index, but it should be. Instead, all formerly recognized forms of autism are lumped together under the title Autism Spectrum Disorder (ASD). In reality, there are vast differences between various types of autism. Asperger’s Syndrome has traditionally been called a high functioning form of autism. Those of us in the autistic rights movements are trying to reject the terms high and low functioning as those terms have their origins in the institutional setting where they were used to discriminate against various types of patients. Instead of using the terms high and low functioning, people should just describe the person in question. Like people with all forms of autism, people with Asperger’s Syndrome have a tough time interacting socially, and can have mood swings and a degree of emotional variation from time to time. Over the 27 years of my life, I had become to a large degree able to socialize with other people in a structured setting. Therefore I have a tendency to find friends in clubs and organizations of like-minded people. Interpersonal relationships between myself and other individuals tend to be more difficult. I do get pretty emotional at times, but I do my best to keep this in check on a social level.